COPYRIGHT AND USER AGREEMENT
The Haemo-QoL questionnaire-set, available in three age group versions, for children and for parents, in short and in long forms, and in the six original languages (Dutch, English, French German, Italian, Spanish), is a joint property of the Haemo-QoL Study Centre at the University of Hamburg, Germany and Bayer Biological Products, Research Triangle Park, North Carolina, USA.

Since the original project many further language versions were linguistically validated by MAPI using a quality-controlled forward/backward translation procedure and developers review. Cross-cultural validity was determined with positive results by clinicians’ reviews (partially validated); in several languages a further validation step, namely cognitive interviews, were performed with children and/or parents of the respective age groups (fully validated).

The Haemo-QoL is currently linguistically validated in 33 languages, which are now available online.

Further 6 languages were prepared within the European ESCHQoL project. These language versions are not yet linguistically validated and therefore not yet available on the website (Czech, Greek, Lithuanian, Portuguese, Slovakian, Slovenian).
An Arabic version is exisiting, but is not linguistically validated and therefore not available on the website.

MAPI is currently validating additional language versions of the Haemo-QoL for the long and short versions of the questionnaire, which will be soon available on this website as well.

To use the questionnaires, the potential user has to register on this web site. The questionnaire copyright is to be acknowledged in the use and the publication of results (please consult the publication list for correct citation).

Although available at no charge, the use of the original Haemo-QoL and existing translations is subject to the standard copyright protection, i.e.

– the original source and authorship shall be quoted and acknowledged,
– the instrument shall not be modified to maintain its scientific integrity.

Development of new translations, modified versions or any other derivatives – such as electronic versions – are not permitted without special permission and involvement of the Haemo-QoL Study Group. Please contact Dr. Sylvia von Mackensen.