Links Questionnaires Generic quality of life questionnaires were included for children (KINDL) and adults (SF-12) in the Haemo-QoL project: KINDL questionnaire SF-12 questionnaire Questionnaire for the assessment of subjective physical functioning: HEP-Test-Q Projects European Projects in which quality of life (generic and disease-specific) was assessed in children and which are related with the Haemo-QoL project: The DISABKIDS Project aims at assessing health-related quality of life in children and adolescents with a chronic health condition cross-culturally. The KIDSSCREEN Project aims at assessing health-related quality of life in healthy children and adolescents cross-culturally. The ESCHQoL Project is a European study in clinical, health economic and quality of life outcomes in haemophilia treatment. 2024 haemophiliac patients (kids, parents, and adults) will be investigated in 22 European countries. MAPI Research Institute Mapi Research Institute is an international company with a special interest in advancing the worldwide use of patient-reported and clinical assessments through linguistic validation for appropriate cross-cultural use and interpretation. Bayer Bayer Biological Products, Research Triangle Park, North Carolina, USA has sponsored the Haemo-QoL project. The Bayer Biological Products EU Website (www.biological.com) is a resource for patients, families, and healthcare professionals interested in learning more about haemophilia and its treatment. The Bayer Biological Products corporate website (www.bayerbiologicals.com) contains information about the division, the therapeutic areas for which we manufacture treatments, and news about our research and technology achievements.
