Registration – Haemo-QoL

Please notice: In reaction to abuse of the registration form, immediate access to the download area after registration is no longer available. Your data will be validated, a username and password will then be sent to you. We apologize for the inconvenience.

The questionnaires can be downloaded and used after registration without any fee for academic purposes. If the Haemo-QoL questionnaire is used in a clinical trial the developer of the Haemo-QoL should be consulted prior to the start of the study. The User is asked to identify him/herself as well as the institution he/she is working in and to provide information about the intended use of the questionnaires in research or clinical practice. When using the Haemo-QoL questionnaire in a clincial or epidemiological trial a synopsis must be provided prior to the start of the study to the Haemo-QoL Group. In addition scoring information is provided for each questionnaire version to score the questionnaire either by hand or by using a computer program after data input as well as a short manual.

It is mandatory that items of the questionnaire are not changed in wording and that no unauthorised translations are made.

To register please fill in the appropriate registration form then you can go to the respective questionnaires on this site.

*= mandatory fields

Mr Mrs
Title

Name*

Surname*

Institute, Department*

Organisation

E-Mail*

Phone*

Fax

Street, No.*

City*

ZIP-Code*

Country*

Please provide following additional information concerning the Study Synopsis. If you do not plan to use the Haemo-QoL in a study, please insert N/A = not applicable.

Study Title*

Principal Investigators*

Study Design*

Study Objectives*

Inclusion Criteria*

Exclusion Criteria*

Methods*

Assessments*

Expected study sample*

Time frame*

Sponsor of the study*

Haemo-QoL

The Quality of life assessment instrument for children and adolescents with haemophilia