Partner PARTICIPATING CENTERS AND COORDINATION CENTER Investigator Country Center No. Contacts Dr. M. Luisa Martinez Puentes Dr. Rosario Perez Garrido Spain Dr. Roberto Sosa Hospital General Virgen del Rocio Hemophiliaq (1ª planta sur) Avda. Manuel Siurot s/n Sevilla 41013 Spain 12 Tel.: +34/954248389 +34/955012223 Fax: +34/954248389 e-mail: rsosa@hvr.sas.cica.es Rosario.perez.garrido.sspa@juntadeandalucia.es Dr. Pilar Arranz Dr. Eduardo Remor Spain Dr. Fernando Hernandez Navarro Servicio de Hematologia Hospital Universitsario La Paz P° de la Casellana 261 Madrid 28046 Spain 13 Tel.: +34/917277411 Fax: +34/917293898 e-mail: piarranz@vodafone.es e_remor@inicia.es Dr. José Aznar Dr. Querol Dr. Lorenzo Spain Servicio de Coagulapatias Congenitas Hospital Universitario La Fe Avda Campanar 21 Valencia 46009 Spain 14 Tel.: +34/963868752 Fax: +34/963868752 e-mail: aznar_jan@gva.es Dr. Felx Lucia Spain Servicio de Hematologia H Miguel Servet -Hematologia- P Isabel la Católica Zaragoza 50009 Spain 15 Tel.: +34/976765500 ext. 2471 +34/976750048 Fax: +34/976566234 e-mail: jlucia@medynet.com Dr. Marijke van den Berg Netherlands Creveldkliniek Academisch Ziekenhuid Utrecht Heidelbergerlaan 100 3584 CX Utrecht The Netherlands 21 Phone: +31/30/250-8450 Fax: +31/30/250-5438 e-mail: H.M.vandeBerg@digd.azu.nl Dr. Marjolein Peters Netherlands Dept of Pediatric Hematology G 8 Academisch Medisch Centrum Meibergdreef 9 1105 Amsterdam The Netherlands 22 Tel.: +31/20/5662727 Fax: +31/20/6197735 e-mail: m.peters@amc.uva.nl Dr. Monique Vicariot France Centre de Traitment de l'Hémophilie Hospital Morvan 5 Avenue Foche 29609 Brest – Cedex France 31 Phone: +33/298293650 Fax: +33/298223892 e-mail: monique.vicariot@wanadoo.fr Dr. Hervé Chambost France Centre de l'Hémophilie Service d'hématologie Pédiatrique Hôpital la Timone Bd Jean Moulin 13385 Marseille – Cedex 5 France 32 Phone: +33/491386776 Fax: +33/491384989 e-mail: herve.chambost@ap-hm.fr Dr. Annie Borel-Derlon France Centre de l'Hémophilie Laboratoire d'Hématologie CHU de CA Avenue de la Côte de Nacre 14033 Caen – Cedex France 33 Phone: +33/231064565 Fax: +33/231064566 e-mail: borelderlon-a@chu-caen.fr Dr. Claude Guerois France Centre de l'Hémophilie Laboratoire d'Hématologie CHR Trousse Route de Loches 37170 Chambray Lés Tours France 34 Phone: +33/247474615 Fax: +33/247475904 e-mail: c.guerois@chu-tours.fr Dr. Edith Fressinaud Dr. Marc Trossaert France Centre de l'Hémophilie CHU Hôtel Dieu Immeuble J. Monnet Jean Monnet 44093 Nantes – Cedex 1 France 35 Phone: +33/240087468 Fax: +33/240087448 e-mail: edith.fressinaud@chu-nantes.fr Dr. Chantal Rotschild France Centre de l'Hémophilie Hôpital Necker 149 rue de Sèvres 75743 Paris – Cedex 15 France 36 Phone: +33/1444/95273 Fax: +33/144495270 e-mail: chantal.rothschild@nck.ap-hop-paris.fr Sister Kate Khair UK Dr. Ian Hann Great Ormond Street Hospital for Children NSH Trust WCIN3JH London UK 41 Tel.: +44/20 7829 8846 Fax: +44/20 7829 8872 e-mail: khairk@gosh.nhs.uk Dr. Angiola Rocino Italy Centro di Emofilia r Trombosi Ospedale San Giovanni Bosco Via F.M. Brigani 255 80144 Napoli Italy 51 Phone: +39/081/2545299 Fax: +39/081/2545301 e-mail: angiolar@tin.it Dr. Alessandro Gringeri Italy "A. Bianchi Bonomi" Hemophilia and Thrombosis Center IRCCS Maggiore Hospital & University of Milan Via Pace 9 20121 Milano (MI) Italy 52 Tel.: +39 02 55035308 Fax: +39 02 545 7074 e-mail: alessandro.gringeri@unimi.it Dr. Giovanni Longo Italy Dr. Massimo Morfini Centro Emofilia Azienda Ospedaliera Careggi V. le G.B. Morgagni 85 50134 Firenze (FI) Italy 53 Tel.: +39/055/ 4277958 Fax: +39/055/ 412098 e-mail:g.longo@dfc.unifi.it Tel.: +39 55 4277587 Fax: +39 55 4277794 e-mail: m.morfini@dfc.unifi.it Dr. Laura Perugini Dr. Maria Messina Italy Servizio di Immunoematologia e Medicina Trasfusionale Ospedale Infantile "Regina Margherita" P.zza Polonia 94 10126 Torino Italy 54 Tel.: +39/011/315591 Fax.: +39/011/3135589 e-mail: trasf@oirmsantanna.piemonte.it Dr. med. Harald Lenk Dr. Petra Nickel Germany Klinik für Kindermedizin Universität Leipzig Oststr. 21 – 25 04317 Leipzig Germany 62 Tel.: +49/341/9726333 Fax: +49/341/9726039 e-mail: lenkh@medizin.uni-leipzig.de Dr. Günter Auerswald Marita Peters Germany Prof. Hess Kinderklinik Zentralkrankenhaus St. Jürgenstr. 28 28205 Bremen Germany 63 Tel.: +49/421/497 5410 +49/421/497 3655 Fax: +49/421/497 3311 or 4631 e-mail: guenterauerswald@aol.com Dr. Cornelia Wermes Dr. v. Depka Germany Pädiatrische Hämatologie und Onkologie Medizinische Hochschule Hannover Carl-Neuberg-Str. 1 D-30625 Hannover Germany 64 Phone: +49/511532-3221 -3214 Fax: +49/511532-4146 e-mail: cornelia.wermes@gmx.de Dr. Karin Kurnik Germany v. Haunerische Kinderklinik Lindwurmstr. 4 80336 München Germany 66 Phone: +49/89/5160-2853 -2811 -2846 Fax: +49/89/5160 e-mail: Karin.Kurnik@kk-i.med.uni-muenchen.de Coordination Center Prof. Dr. Monika Bullinger Dr. Sylvia von Mackensen Germany Institute and Clinic for Medical Psychology Centre of Psychosocial Medicine University Hospital Hamburg-Eppendorf Martinistr. 52; S 35 20246 Hamburg Germany Tel. ++49 (0) 40 / 42803-6430 Fax ++49 (0) 40 / 42803-4940 e-mail: bullinger@uke.uni-hamburg.de s.mackensen@uke.uni-hamburg.de
