Partner

PARTICIPATING CENTERS AND COORDINATION CENTER

Investigator Country Center No. Contacts
Dr. M. Luisa Martinez Puentes
Dr. Rosario Perez Garrido
Spain Dr. Roberto Sosa
Hospital General Virgen del Rocio
Hemophiliaq (1ª planta sur)
Avda. Manuel Siurot s/n
Sevilla 41013
Spain
12 Tel.: +34/954248389
+34/955012223
Fax: +34/954248389
e-mail: rsosa@hvr.sas.cica.es
Rosario.perez.garrido.sspa@juntadeandalucia.es
Dr. Pilar Arranz
Dr. Eduardo Remor
Spain Dr. Fernando Hernandez Navarro
Servicio de Hematologia Hospital Universitsario
La Paz P° de la Casellana 261
Madrid 28046
Spain
13 Tel.: +34/917277411
Fax: +34/917293898
e-mail: piarranz@vodafone.es
e_remor@inicia.es
Dr. José Aznar
Dr. Querol
Dr. Lorenzo
Spain Servicio de Coagulapatias Congenitas
Hospital Universitario La Fe
Avda Campanar 21
Valencia 46009
Spain
14 Tel.: +34/963868752
Fax: +34/963868752
e-mail: aznar_jan@gva.es
Dr. Felx Lucia Spain Servicio de Hematologia
H Miguel Servet -Hematologia-
P Isabel la Católica
Zaragoza 50009
Spain
15 Tel.: +34/976765500
ext. 2471
+34/976750048
Fax: +34/976566234
e-mail: jlucia@medynet.com
Dr. Marijke van den Berg Netherlands Creveldkliniek
Academisch Ziekenhuid Utrecht
Heidelbergerlaan 100
3584 CX Utrecht
The Netherlands
21 Phone: +31/30/250-8450
Fax: +31/30/250-5438
e-mail: H.M.vandeBerg@digd.azu.nl
Dr. Marjolein Peters Netherlands Dept of Pediatric Hematology
G 8
Academisch Medisch Centrum
Meibergdreef 9 1105
Amsterdam
The Netherlands
22 Tel.: +31/20/5662727
Fax: +31/20/6197735
e-mail: m.peters@amc.uva.nl
Dr. Monique Vicariot France Centre de Traitment de l'Hémophilie
Hospital Morvan
5 Avenue Foche
29609 Brest – Cedex
France
31 Phone: +33/298293650
Fax: +33/298223892
e-mail: monique.vicariot@wanadoo.fr
Dr. Hervé Chambost France Centre de l'Hémophilie
Service d'hématologie
Pédiatrique
Hôpital la Timone
Bd Jean Moulin
13385 Marseille – Cedex 5
France
32 Phone: +33/491386776
Fax: +33/491384989
e-mail: herve.chambost@ap-hm.fr
Dr. Annie Borel-Derlon France Centre de l'Hémophilie
Laboratoire d'Hématologie
CHU de CA
Avenue de la Côte de Nacre
14033 Caen – Cedex
France
33 Phone: +33/231064565
Fax: +33/231064566
e-mail: borelderlon-a@chu-caen.fr
Dr. Claude Guerois France Centre de l'Hémophilie
Laboratoire d'Hématologie
CHR Trousse
Route de Loches
37170 Chambray Lés Tours
France
34 Phone: +33/247474615
Fax: +33/247475904
e-mail: c.guerois@chu-tours.fr
Dr. Edith Fressinaud
Dr. Marc Trossaert
France Centre de l'Hémophilie
CHU Hôtel Dieu
Immeuble J. Monnet
Jean Monnet
44093 Nantes – Cedex 1
France
35 Phone: +33/240087468
Fax: +33/240087448
e-mail: edith.fressinaud@chu-nantes.fr
Dr. Chantal Rotschild France Centre de l'Hémophilie
Hôpital Necker
149 rue de Sèvres
75743 Paris – Cedex 15
France
36 Phone: +33/1444/95273
Fax: +33/144495270
e-mail: chantal.rothschild@nck.ap-hop-paris.fr
Sister Kate Khair UK Dr. Ian Hann
Great Ormond Street
Hospital for Children
NSH Trust
WCIN3JH London
UK
41 Tel.: +44/20 7829 8846
Fax: +44/20 7829 8872
e-mail: khairk@gosh.nhs.uk
Dr. Angiola Rocino Italy Centro di Emofilia r Trombosi
Ospedale San Giovanni Bosco
Via F.M. Brigani 255
80144 Napoli
Italy
51 Phone: +39/081/2545299
Fax: +39/081/2545301
e-mail: angiolar@tin.it
Dr. Alessandro Gringeri Italy "A. Bianchi Bonomi"
Hemophilia and Thrombosis Center
IRCCS Maggiore Hospital & University of Milan
Via Pace 9
20121 Milano (MI)
Italy
52 Tel.: +39 02 55035308
Fax: +39 02 545 7074
e-mail: alessandro.gringeri@unimi.it
Dr. Giovanni Longo Italy Dr. Massimo Morfini
Centro Emofilia
Azienda Ospedaliera Careggi
V. le G.B. Morgagni 85
50134 Firenze (FI)
Italy
53 Tel.: +39/055/ 4277958
Fax: +39/055/ 412098
e-mail:g.longo@dfc.unifi.it
Tel.: +39 55 4277587
Fax: +39 55 4277794
e-mail: m.morfini@dfc.unifi.it
Dr. Laura Perugini
Dr. Maria Messina
Italy Servizio di Immunoematologia
e Medicina Trasfusionale
Ospedale Infantile "Regina Margherita"
P.zza Polonia 94
10126 Torino
Italy
54 Tel.: +39/011/315591
Fax.: +39/011/3135589
e-mail: trasf@oirmsantanna.piemonte.it
Dr. med. Harald Lenk
Dr. Petra Nickel
Germany Klinik für Kindermedizin
Universität Leipzig
Oststr. 21 – 25
04317 Leipzig
Germany
62 Tel.: +49/341/9726333
Fax: +49/341/9726039
e-mail: lenkh@medizin.uni-leipzig.de
Dr. Günter Auerswald
Marita Peters
Germany Prof. Hess Kinderklinik
Zentralkrankenhaus
St. Jürgenstr. 28
28205 Bremen
Germany
63 Tel.: +49/421/497 5410
+49/421/497 3655
Fax: +49/421/497 3311 or 4631
e-mail: guenterauerswald@aol.com
Dr. Cornelia Wermes
Dr. v. Depka
Germany Pädiatrische Hämatologie
und Onkologie
Medizinische Hochschule Hannover
Carl-Neuberg-Str. 1
D-30625 Hannover
Germany
64 Phone: +49/511532-3221
-3214
Fax: +49/511532-4146
e-mail: cornelia.wermes@gmx.de
Dr. Karin Kurnik Germany v. Haunerische Kinderklinik
Lindwurmstr. 4
80336 München
Germany
66 Phone: +49/89/5160-2853
-2811
-2846
Fax: +49/89/5160
e-mail: Karin.Kurnik@kk-i.med.uni-muenchen.de
Coordination Center
Prof. Dr. Monika Bullinger
Dr. Sylvia von Mackensen
Germany Institute and Clinic for Medical Psychology
Centre of Psychosocial Medicine
University Hospital Hamburg-Eppendorf
Martinistr. 52; S 35
20246 Hamburg
Germany
Tel. ++49 (0) 40 / 42803-6430
Fax ++49 (0) 40 / 42803-4940
e-mail: bullinger@uke.uni-hamburg.de
s.mackensen@uke.uni-hamburg.de